I can't believe I found this board, I stumbled upon it by accident, and I've read as much as I can
Your stories have torn my heart, and most have hit close too home, I'm at a point where I don't know where to turn...being a full time caregiver in the prime of my life, is the hardest thing I've ever done....and I always feel guilty when I long for the days of freedom and the life we used to have
It's been 5 years now (my husband is a heart/kidney patient, 5 day a week dialysis, and needs constant care...he is 50 and I am 47) of caring for him, at the start, he was ok to drive and take care of himself a bit, but now, he can barely walk to the bathroom...it's not that I mind caring for him, I would do it for the next 100 years if need be, its just that sometimes I feel that no one understands what it means, and what it takes, to be a full time caregiver...people keep heaping more things on my already overflowing plate.
I don't expect family members to help out, I realize they have their busy lives, but like tonight, my mother in law called and I was taking a 30 minute nap, and she was dumbfounded that I had the nerve to nap during the day!
(I was up all night with hubby, he had a bad night)
Aside from the no sleeping thing, I have had a broken knee cap for over a year that needs fixing, but I can't be in the hospital over night, to have it fixed, so the pain is crazy, and it makes me very cranky.
our daughter helps as best she can, but she is a full time college student, and I want school to come first
I guess my question is, how would a full time caregiver, be able to have surgery that requires them to be away from the house for a day or two? Medicare will not pay for a nurse to be here 24 hours a day (and I sure can't afford it, I am not able to work any longer since caring for him)
My husband is uncomfortable with the idea of having our daughter care for him for an entire day, as he needs help in the bathroom, and I fully understand him not wanting her to see him like that.
Again, I want to thank everyone for the stories they have shared, I can't begin to tell you how much it means to me that I am not alone (even tho it breaks my heart to know I am not the only one in this situation)