Update on my husband. He has MS and been in wheel chair since 2000. I got burnt out taking care of him and my 3 kids. When in reallity I have been burnt out for years before that, but didn't realize until I looked at some old journals.
I placed him in NH in October because I couldn't get a medicaid waiver for him even tho I was on the list for almost 7 years. Since he has been in the NH he has lost weight and they make him sleep on a bed that is very uncomfortable for him so he now takes a sleeping pill and on pain patch with peraset(sp) because the bed hurts him. He got sores on him butt a few weeks after he was there and they gave him an air mattress that helped him. As soon as there cleared up the took that mattress away. If they give him a shower in the afternoon they stick him in bed for the rest of the night so they don't have to do it later. For the last 3 weeks his feet have been swollen and then they found that he had a sore on the side of him foot. I kept asking them why was his feet swollen and they didn't know. They finally (so they say) ran some tests and everything came back fine. Today when I was walking out the door to bring daughter to friends party, they nursing home called me and told me my husband went outside and was by the street and was disoriented. I told them to send him to the hospital and he said he was waiting for their doctor to call back. They sent him to the hospital and I was able to see him about one hour later and he was not the same. Very disoriented and didn't remember what happened and I told the ER doctor that he wasn't like that. The took tests and it seems that he must of got an infection and now it is in his blood because it wasn't taken care of.
I am now going to try to get help to take him home. It has been very stressful with him there. I thought I would be able to relax. The only problem with that is that now he is weaker then when he left because they wouldn't let him transfer himself when he could because they were in a rush. I know that I can get a hoyer from the VA and a hospital bed.
If that wasn't enough I am in the process of a refi as we had an adjustable mortgage and then of course my homeowners insurance that got doubled last year (FL) has decided not to renew me and thousands of others. Now I have to get insurance before June 1st even though it expires in August.
Well my plans for the day were to work outside in yard but my plans don't seem to work out.