Hello - I am desperately looking for some advice. My mom has had cancer for many years, and my sister and I have always promised to keep her at home - she has always said she wants to die at home. Her cancer started as breast cancer and then came back on the bones, liver, and brain. The brain radiation has caused all sorts of awful side effects, including these seizures and TIA's - which make her act crazy and confused. Well a few days ago, she had one that she can't pull out of. Since she's mentally incapacitated but not physically ready for hospice, the hospital says she has to go to a nursing home. We've been trying to find one with an open bed (of course all the best ones are full), and as soon as we do they will move her. I am beside myself with grief. It was NEVER supposed to go this way. The Dr.'s even said we'd never have to worry about a nursing home because cancer patients usually just go on hospice when they can't tolerate treatment anymore. Worse yet, the social worker is telling us that her medicare plan will only cover hospice OR a nursing home - one or the other. Since she needs a home right now, that means no hospice.
Of course we can't pay for 24-hour care at home all by ourselves, but I have to get her out of there. The depression will kill her. Does anyone know where I can even begin to search for options? Is there any way at all to get medicare to cover ANY of it? Or is there any type of hospice that would provide around the clock care at home??? It's very hard for me to figure this all out since I live in Colorado and my mom is in Pennsylvania with my sister. I will be flying out there as soon as I can, but if there are people I should meet with, I want to have it arranged before I get there...
Thanks in advance for any help you can suggest!!!