My wife has CIDP (chronic inflamatory demylonating polyneuropathy) and has for almost 30 years. It is a degenerative disease. She is absolutely the toughest person I have ever known. Even though she has her "down in the dumps" days and feels like the disease has finally won. She seems to get back up and go again. She is still working and wants to continue. I support her in that. We feel it keeps her active and busy. She is a secretary and can handle that position from her power chair. My stress level reaches the max as I try to keep her there. I feel guilty as I can't seem to find enough time to do it all and my job. I think the biggest thing is to be able to talk to some one that understands what I am experiencing and doesn't think I am looking for pity. The farther the disease advances the more dependent on me she becomes. (I am not complaining. We are in this together!) I feel like if I talk about it, people think I am complaining. I am between a rock and a hard place. Sounds kind of crazy I know, But somebody understands what I mean!!! We have been married for 37 years and I wouldn't trade her for all the healthy women in the world!!!!!