Gretchen has received a strong amount of responses... because she has done so, she has asked for permission to extend the survey for you to fill in through March to April 1st 2008. Thank you.
Caregiver Survey - Online & Face to Face Support Grps Alz & Demen-Your help is needed
Dear Online Participants,
I am conducting a research pilot study on the effectiveness of online support groups and face to face support groups on caregiver role strain on caregivers of family members with Alzheimer�s and dementia. If you would like to participate, there is a link that has been posted on this website that will take you to the surveys that you may fill out at your convenience. These surveys are and will be kept confidential.
The purpose of this study includes:
1) Evaluating the effectiveness of online support groups versus face tot face support groups on caregiver role strain
2) Measuring the effectiveness of online support groups and face to face support groups on caregiver role strain
This study is being conducted by Gretchen Anderson, RN from Minnesota State University, Mankato, MN. The knowledge gained from this study will be used to guide the development of support groups for family members.
What participation involves:
If you decide to participate in this study, you are asked to click on the link that is posted on the website. The surveys and questionnaires will not specifically include identifying information, such as your name, address, or contact information.
You will be asked to complete a demographic survey that asks backgrounds information, a caregiver strain questionnaire that asks about caregiver strain, and questions that ask about support groups. These will take about thirty minutes to complete.
Some of the questions in the surveys may make you feel uncomfortable. You may choose to not answer any questions. It is your decision if you would like to participate or not in this study. There will be no changes in relationships with individuals involved in the support group if you choose not to participate in this study. Because internet surveys are not completely secure, steps have been done to insure security, but the security can be compromised. By completing these questionnaires, you are indicating your consent to participate in this research study.
Instructions regarding participation:
If you decide to participate in this study, please complete the questionnaires via the online link.
Contacts and Questions:
If you have any questions regarding this study or would like to request more information please contact me, Gretchen Anderson, RN by phone at 507-421-6196 or email at firstname.lastname@example.org. You may also contact me after completing the study surveys to request that a summary of the study result be sent to you at the completion of the study, if you desire. The results of the study will be posted online.
I now have my IRB number for my research project: #3181: "The effectiveness of online and face to face support groups on caregiver role strain: A pilot study".
This is the link to the survey:
If you have any questions or concerns regarding this study and would like to talk to someone other than the researcher, you may contact:
Sandra Eggenberger, RN, PHD
Minnesota State University
email at Sandra.email@example.com.
You may also contact:
Dr. Anne Blackhurst
Institutional Review Board Administrator
Minnesota State University
Thank you for your time and cooperation. Your participation is gratefully appreciated.
Gretchen Anderson, RN