I wanted to add a suggestion, I have not posted in a long while, but do check in to read the posts often. Some might recall that I take care of my Mom (she has COPD, CHF, a trach, a feeding tube, and cancer to name a few things she suffers from). When this started almost six years ago, we could not find help for her, so tried a rehab center for a short time, then brought her home. I paid for nursing care a few hours a day and I took care of her the remaining hours. We tried to get Medicaid and were refused. After about nine months, I simply was not able to continue to pay privately as I retired to care for her. Then we found that the local Office on Aging (I am told every state has some version of this) had a program called Medicaid Waiver, this is a program designed to keep the aged and disabled in their homes. If the person is under 65 the program is called The League of Human Dignity. The way it is set up is that that my Mom must pay all but $ 412.00 of her income each month towards her own care and then Medicaid will cover the rest. However, when a family member or members agree to live in the home that money is paid to them to keep the person at home and oversee their care. In our case I am paid the money (which I can give back to Mom for her needs), and then Medicaid will pay for 35 hours of care (per week)for Mom and I take care of her otherwise. This is in addition to her Medicare that covers her medical care.The program falls under the state Health and Human Services Division.I do not know if this type of program could help you or not as there needs to be some family members close by, and it is a huge commitment. By this I mean I had to agree to be within a certain distance of my home (Mom lives with me), and be able to be available at all times, with no time off. While I love my Mom, I have to tell you that I would advise anyone to think about this carefully, as committing to care for someone 24/7, is not easy. I hope this might give you some ideas of where to look for help.