It is quite a challenge waiting for a transplant... coupled with caring for two children... even more so.
You have found a safe haven here where you won't feel selfish or uncaring. While the site is for caregiving in general, you will find many have posted with regard to transplants but the most valuable aspect of the community is the emotional and spiritual support along with the resources we can guide you to.
I am sure there is a lot more you would like to share and get off your chest.. we are here for you.
Richest blessings in all you are doing..