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Reply to "Expected end of life symptoms?"

Hi Jeanne,
My mom also had cancer which started in her colon and spread throughout her body to other organs. She passed away last November. I had hospice care from last September until she passed. She too was unable to stand or walk and was completely incontinent. I was her primary caregiver for 11 months. On the day my mom passed away, the hospice nurse gave me a book called "Gone From My Sight". I wish I had gotten a copy of that book sooner. It tells you what signs to look for toward the end of life. If you would like a copy of it, I would be more than happy to send it to you. You may email me privately if you want. Towards the end, my mom stayed in one position, could not feed herself or even drink from a straw. She could not even lift a plastic spoon. She was seeing my grandmother in the bedroom (my grandmother passed away in 1999). She would talk to people she saw in the bedroom and see things that weren't there. When I questioned hospice about these things, they told me it was probably side effects from her medication. I now know these are signs of the coming of the end. She would cry out in pain when she had to be moved to be changed or washed. The hospice nurse said she was having muscle spasms in her legs and that was what was causing the pain. My mom was taking a lot of different medications towards the end including valium, liquid oxycodone and a few others. I knew it was time the day my mom passed. She was very restless and her breathing was very erratic. At 4:00 AM that day she was having a lot of trouble breathing. At 8:00 AM she was still breathing erratic but was unresponsive to me at that point. I hope your mom is resting comfortably and that you are doing ok. Please let me know if you would like a copy of the book I mentioned.

This website is a tremendous help - even though I don't post often - just reading through the posts lets you know you are not alone and a lot of people are going through the same thing and many share the same feelings.

Take care,
Jackie
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